Book Title: A Long Goodbye: Ed and Mary's Journey with Lewy Body Dementia

Authors: Adele Baldwin; Stephen Anderson; Michael Inskip; Kellie Johns; David Lindsay; Bronwyn Mathiesen; and Marie Bodak

Book Description: This book, built around Ed’s journal, chronicles Ed’s experiences as a carer following his wife Mary’s diagnosis with Lewy body dementia.  Students and experienced health professionals are rarely afforded such an insight into how their words and actions are interpreted by, and impact upon patients, families and friends. Ed’s Story provides information and education resources related to dementia care.  Although specifically focusing on Lewy body dementia, the resources are transferable to caring for people with any type of dementia. The freely available resources are suitable for use by students in the health professions, educators, formal and informal carers.

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License:
Creative Commons Attribution NonCommercial NoDerivatives

Contents

Book Information

Book Description

Often the lessons to be learned from recipients of care are overshadowed by more formal learning strategies. Ed’s story is one of compassion, strength, laughter, loyalty and loss.  It chronicles the journey of caring for a loved one diagnosed with Dementia with Lewy Bodies.  Unfortunately, diagnosis of any form of dementia is more frequent in our communities than many of us are aware.  Very few people, however, journal their story as their lives, and that of those around them, change. Thus, the richness of learning from recipients of formal care and support is a unique opportunity for all health professionals working in dementia care. Further, the raw, honest insights in Ed’s story are a valuable learning tool for any health professional from any discipline, particularly those who are still learning their craft. Sometimes the impact our words and actions have on patients and families is not apparent, and Ed’s reflections allow us a glimpse into how the actions and words affect them, both positively and negatively.

Authors

Adele Baldwin; Stephen Anderson; Michael Inskip; Kellie Johns; David Lindsay; Bronwyn Mathiesen; and Marie Bodak

License

Subject

Home nursing and caring

Metadata

Title
A Long Goodbye: Ed and Mary's Journey with Lewy Body Dementia
Authors
Adele Baldwin; Stephen Anderson; Michael Inskip; Kellie Johns; David Lindsay; Bronwyn Mathiesen; and Marie Bodak
Illustrator
Jane Tarlinton of designbyjane@live.com.au
License

Please cite as:

Baldwin, A., Anderson, S., Inskip, M., Johns, K., Lindsay, D., Mathiesen, B. & Bodak, M. (2021). A long goodbye: Ed and Mary’s journey with Lewy body dementia. James Cook University.
https://doi.org/10.25120/jnhx-xws4

Primary Subject
Home nursing and caring
Additional Subject(s)
Care of people with specific needs, Alzheimer’s and dementia, Nursing and ancillary services, Educational material
Institution
James Cook University
Publisher
James Cook University
Publication Date
September 22, 2021
Digital Object Identifier (DOI)
https://doi.org/10.25120/jnhx-xws4
Ebook ISBN
978-0-6489220-4-9